You can also find this playlist on SoundCloud.com/NeurologyAcademy and the SoundCloud App.
Background information to this meeting
HCPs, service providers, charities and planners all came together to hear eminent individuals talk about topics ranging from policy and data, to patient perspective and empowerment. The room then collectively questioned, discussed or debated that topic in relation to MS services, looking to decrease variation and optimise services for those living with the neurological condition.
→ Programme for this event (PDF)
Variance in MS Services, for example, access to and the prescribing of disease-modifying therapies, have been well documented across England by surveys performed by the MS Society, MS Trust and the RCP. This has been backed up by data presented at the ABN in Birmingham from the NHSE Bluteq database. We and others feel this is a problem for people living with MS and is a barrier to improving outcomes for pwMS being managed by the NHS in England. To address this problem we held this initial meeting of representatives from MS DMT prescribing centres across England. The aim of the meeting is to generate ideas and proposals to address and solve this problem. We envisage holding subsequent follow-on meetings to implement and test potential proposals developed as a result of this meeting.
Watch the videos from this event and view the presentation slides
Day 1: Thursday, 1 November 2018
Defining the Problem
Prof Gavin Giovannoni
Professor of Neurology, Barts and The London School of Medicine
My Experience
Stephen Bleach
The Sunday Times
Variation in Healthcare Provision. Warranted and Unwarranted
Dr Charlie Davie
CEO, UCLPartners
Lessons from Cardiac Surgery
Prof Ben Bridgewater
CEO, Health Innovation Manchester
GIRFT (Getting It Right First Time)
Dr Geraint Fuller
Clinical Lead GIRFT, Gloucestershire Hospitals NHS Foundation
NHS Perspective
Prof Adrian Williams
Chair, Neuroscience Clinical Reference Group (CRG)
Dinner Speech
Alastair Hignell CBE
Patron of MS-UK, ex England Rugby player, County Cricketer and BBC Commentator
Day 2: Friday, 2 November 2018
Inequalities in access to health and social care among adults with MS: a scoping review of the literature
Paola Dey
Edge Hill University
Variance in MS Service Provision – MS Society’s Perspective
Georgina Carr
Head of Campaigns and External Relations, MS Society
Variance in the Provision of MS Nurse Specialists – MS Trust
David Martin
CEO, MS Trust
A Patient’s Perspective
George Pepper
MSer and founder of Shift.ms
The NHSE DMT Treatment Algorithm
Dr Waqar Rashid
Neurologist and member of the ABN MS Specialist Interest Group
How will Bluteq Contribute to Reducing Variance in DMT Prescribing?
Malcolm Qualie
NHSE Chief Pharmacist
MS MDTs as a Vehicle to Improve Variance
Dr David Rog
Consultant Neurologist, Salford
Influencing Commissioners
Jerry Clough
Programme Director, OPTUM
The Role of the MS Pharmacist
Joela Mathews
Neuroscience Pharmacist, Barts Health NHS Trust
The Use of Databasing as a Tool to Tackle Variance
Prof Neil Robertson
Professor of Neurology, Cardiff
Implementing the NHSE Stopping Criteria for DMTs
Dr Gordon Mazibrada
Consultant Neurologist, Birmingham
Web-based Pharmacovigilance as an Opportunity to Track Variation in MS Service Provision
Dr Ruth Dobson
Clinical Senior Lecturer, QMUL
DMT Monitoring
Rachel Dorsey-Campbell
Neuroscience Pharmacist, Imperial NHS Trust
Audit and Quality Improvement Tools to Reduce Variance
Prof Jeremy Hobart
Professor of Neurology, Plymouth
Feedback from Breakout Groups
Dr Gordon Mazibrada, Dr David Rog & Prof Jeremy Hobart
Brainstorming to Come Up with Local/Regional Solutions to Reduce Variance