You can also find this playlist on SoundCloud.com/NeurologyAcademy and the SoundCloud App. 

Background information to this meeting

The first two days of November 2018 saw over 110 MS Health Care Professionals (HCPs) gather to discuss how we can end the variation in MS services across the UK.

HCPs, service providers, charities and planners all came together to hear eminent individuals talk about topics ranging from policy and data, to patient perspective and empowerment. The room then collectively questioned, discussed or debated that topic in relation to MS services, looking to decrease variation and optimise services for those living with the neurological condition.

→ Programme for this event (PDF) 

Variance in MS Services, for example, access to and the prescribing of disease-modifying therapies, have been well documented across England by surveys performed by the MS Society, MS Trust and the RCP. This has been backed up by data presented at the ABN in Birmingham from the NHSE Bluteq database. We and others feel this is a problem for people living with MS and is a barrier to improving outcomes for pwMS being managed by the NHS in England. To address this problem we held this initial meeting of representatives from MS DMT prescribing centres across England. The aim of the meeting is to generate ideas and proposals to address and solve this problem. We envisage holding subsequent follow-on meetings to implement and test potential proposals developed as a result of this meeting.

→ Read more about this event

Watch the videos from this event and view the presentation slides

Videos

 

 

Day 1: Thursday, 1 November 2018

Defining the Problem

Prof Gavin Giovannoni

Professor of Neurology, Barts and The London School of Medicine

My Experience

Stephen Bleach

The Sunday Times

Variation in Healthcare Provision. Warranted and Unwarranted

Dr Charlie Davie

CEO, UCLPartners

Lessons from Cardiac Surgery

Prof Ben Bridgewater

CEO, Health Innovation Manchester

GIRFT (Getting It Right First Time)

Dr Geraint Fuller

Clinical Lead GIRFT, Gloucestershire Hospitals NHS Foundation

NHS Perspective

Prof Adrian Williams

Chair, Neuroscience Clinical Reference Group (CRG)

Dinner Speech

Alastair Hignell CBE

Patron of MS-UK, ex England Rugby player, County Cricketer and BBC Commentator

Day 2: Friday, 2 November 2018

Inequalities in access to health and social care among adults with MS: a scoping review of the literature

Paola Dey

Edge Hill University

Variance in MS Service Provision – MS Society’s Perspective

Georgina Carr

Head of Campaigns and External Relations, MS Society

Variance in the Provision of MS Nurse Specialists – MS Trust

David Martin

CEO, MS Trust

A Patient’s Perspective

George Pepper

MSer and founder of Shift.ms

The NHSE DMT Treatment Algorithm

Dr Waqar Rashid

Neurologist and member of the ABN MS Specialist Interest Group

How will Bluteq Contribute to Reducing Variance in DMT Prescribing?

Malcolm Qualie

NHSE Chief Pharmacist

MS MDTs as a Vehicle to Improve Variance

Dr David Rog

Consultant Neurologist, Salford

Influencing Commissioners

Jerry Clough

Programme Director, OPTUM

The Role of the MS Pharmacist

Joela Mathews

Neuroscience Pharmacist, Barts Health NHS Trust

The Use of Databasing as a Tool to Tackle Variance

Prof Neil Robertson

Professor of Neurology, Cardiff

Implementing the NHSE Stopping Criteria for DMTs

Dr Gordon Mazibrada

Consultant Neurologist, Birmingham

Web-based Pharmacovigilance as an Opportunity to Track Variation in MS Service Provision

Dr Ruth Dobson

Clinical Senior Lecturer, QMUL

DMT Monitoring

Rachel Dorsey-Campbell

Neuroscience Pharmacist, Imperial NHS Trust

Audit and Quality Improvement Tools to Reduce Variance

Prof Jeremy Hobart

Professor of Neurology, Plymouth

Feedback from Breakout Groups

Dr Gordon Mazibrada, Dr David Rog & Prof Jeremy Hobart

Brainstorming to Come Up with Local/Regional Solutions to Reduce Variance