Learning from others: lessons from cardiac surgery

4 January, 2019 | Posted in:

When faced with a daunting challenge, one of the best places to start is often to look at how others have tackled the same challenge; to take forward what they did well and to learn from their mistakes. On 2nd November, the multiple sclerosis (MS) community who had gathered in the name of ending MS […]

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MS Variance: Developing the systems and tools to end variance

21 December, 2018 | Posted in:

One of the discussions which happened time and time again during our ‘MS Service Provision in the UK; the Way Forward’ meeting on 1-2 November was around the systems, tools and mechanisms needed to end unwanted variance in MS services and support. From the usefulness of the systems for measuring disease progression to the systems […]

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The MS Academy 2018

19 December, 2018 | Posted in:

By Prof Gavin Giovannoni, Academic Director How quickly a year passes, particularly if you are healthy and financially secure. We need to spare a thought for people with multiple sclerosis who may not be so lucky and are disabled and unemployed. Let’s hope the recent announcement by Theresa May to end austerity will lead to […]

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Cannabis based products in multiple sclerosis

18 December, 2018 | Posted in:

On the 1 November 2018, it became legal for doctors to prescribe cannabis based drugs, which occurred with widespread media coverage. But, there are limitations to this ruling, which have not been fully explained to the public, and many neurology departments are receiving queries from patients who are requesting prescriptions for cannabis based drugs from […]

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MS Trust report highlights inequality in MS care

17 December, 2018 | Posted in:

By Jo Sopala and David Martin, MS Trust A new report commissioned by the MS Trust has found that many MS specialist nurses are routinely managing more patients than the recommended caseload. As a result, people with MS are missing out on the vital care and support they need and deserve. The report follows on from […]

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MS Variance: The ‘co-ordinated multidisciplinary team meeting’ and what that term really means

14 December, 2018 | Posted in:

A coordinated multidisciplinary team, or ‘MDT’ is one of the things that almost all of healthcare can agree on as an essential part of care for someone living with a long-term condition, like multiple sclerosis (MS). This is supported by NICE guidance which clearly states that all patients should have access to one. In addition […]

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MS Variance: Empowered patients and the role of self-directed care

3 December, 2018 | Posted in:

During the course of the two day MS Variance event, participants heard about the importance of engaging, involving, and empowering people living with MS as a key piece to ending service variation. A core view expressed during various presentations both by professionals involved in healthcare, people living with MS, and those with experience of both, […]

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MS Variance: Monitoring DMTs and the costs associated with good care

30 November, 2018 | Posted in:

At the MS Variance meeting, Rachel Dorsey-Campbell, neuroscience pharmacist at the Imperial NHS Trust, presented her team’s latest research project examining the real cost of effective and safe monitoring for disease-modifying treatments (DMTs). Rachel, graduate of the MS MasterClass, winner of the MS 3 MasterClass Project Award 2018 and one of eight pharmacists in attendance […]

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