- Improve quality of life for people with MS
- Improve access to specialist services for people with MS
- Improve outcomes for people with MS
- Improve efficiency of healthcare utilisation for MS services
- Increase MS patient / MSer’s empowerment and activation
Postcode prescribing and other variances in MS Services were highlighted at our recent MS Academy meeting in Birmingham, in November. Access to and the prescribing of disease-modifying therapies have been well documented across the UK by surveys performed by the MS Society, MS Trust, the RCP and now by NHSE via its Bluteq high-cost drug database. At the Birmingham meeting, we reviewed many of the underlying reasons for variation in MS services and discussed potential solutions. There was virtually a unanimous response from attendees of the Birmingham meeting that we need to be proactive about addressing this issue and that the MS Academy was a forum for doing this.
Following on from this we have widened the scope and put together a steering committee of dedicated people to address the issues raised at the meeting. The follow-on meeting we are hosting in July is to develop a programme of work around many of the issues highlighted, in particular putting in place systems to analyse and share data and to set-up and run a national quality improvement audit. We have also identified that a significant gap in achieving our ambitions is the necessary leadership skills to run and implement change-management programmes locally. We are therefore exploring setting-up a leadership training programme as part of our plans. Please note that we have defined a set of draft objectives that we need to ‘ratify’ or ‘adapt’ at this meeting and these need to be matched-up with well-defined outputs or results.
However, we will also showcase success stories of work across the country and provide a forum for sharing best practice. If you decide to come to the meeting we are expecting all centres to showcase one of their success stories. We want to hear about what you did to improve your MS service and how your improvements may be useful to other centres in the UK.
We are showcasing success stories of work across the country and providing a forum for sharing best practice. All MS centres with representatives at the meeting are invited to share an example. → Find out more
Read more about the idea behind this meeting:
→ Let’s raise the bar for MS Services
Who this meeting is for?
Decision makers in relation to MS services and treatment within MS prescribing centres or the community in the UK.
George Pepper, Georgina Carr, David Martin, Gabriele De Luca, Joela Mathews, Sue Thomas, Sarah White, Dr Agne Straukiene, Jenny Ledsam, Karen Vernon, Dr Abdullah Shehu, Dr Tarunya Arun, Dr Brendan McLean, Dr Mark Westwood
What does the meeting cost?
Each centre will be allocated two free places. Each of these applications will be entitled to a travel allowance, this will be discussed once your application is processed. Accommodation at the BCEC on the 8 July will be provided.
All applications will be dealt with on a first come first served basis.
If we receive more than 2 applications from the same centre, any further applicants from that centre will be placed on to a reservation list, pending applications from other centres.If we do not fill the spaces allocated for each centre, those on the reservations list will have the opportunity to attend; however, there will be a fee. The fee will cover the meeting, dinner and accommodation on the 8th July. This is to ensure we have a diverse range of attendees.
One representative will be allocated for community MS nurses within each of the following regions: NW, NE, Midlands, SE, SW.
The previous meeting was awarded 10 category 1 (external) CPD credits from the Royal College of Physicians London and we will be applying for CPD accreditation again.
Please note our terms and conditions.
Problems opening the online form due to a firewall or other network security system?
→ Download application form (PDF)
Extent of representation so far:
→ List of unrepresented trusts (30/04/2019)
This meeting has been supported by sponsorship from Biogen Idec Ltd and Merck Serono Ltd. The sponsors have not initiated this meeting or had any input in the educational content or the selection of speakers.