During the past months, the world has changed significantly, and we have all had to adapt to challenging circumstances, new ways of working, and uncertainty in what comes next. We have not, however, ceased in working to raise the bar for MS, and nor have you.

This has been a time of unprecedented dynamism – hospitals built in weeks, cold units established in days and technology implemented overnight, and we can harness that impetus and the learning from it.

During this time, work has continued at varying paces within the core workstreams of the Raising the Bar programme. As well as highlighting some fantastic ways that you have been raising the bar for MS around the country, we want to update you with what those workstreams have been doing – in brief:

Read our previous update: Raising the Bar for MS – your essential update: December 2019

How to get involved?

→ Social determinants of health – an audit
→ Healthy lifestyle survey
→ Disease-modifying Lifestyle ‘virtual clinic’: what it is and how to use it
→ Participate in our audit of MS services
→ Register for the 2020 meeting

Take a look at the brief ‘to do lists’ for each workstream and choose the one that resonates most with you, or perhaps pick a couple and work with your team to take a lead on different ones. The audit and data workstream actions, for example, are very quick (5-10 minutes for audit!) and could make a huge difference to your team’s way of working, and the services received by the people with MS in your area.

Data and audit have merged to reflect the overlap between them. → Read more

Videos from our 2019 meeting

Workstream B: Patients as partners

Shift.ms are leading this workstream, with CEO George Pepper member of the ‘Raising the Bar’ steering group and service designer Rob Sloan leading the workstream. Objective: To support people with MS to understand and take control of their condition and how they manage it. The workstream reviewed the considerable evidence that unwanted variance in MS care is driven by a number of  […] 

Continue Reading »

Workstream C: Audit

‘A pragmatic rolling UK MS audit: What data to collect and how to collect it painlessly’ Jeremy Hobart, Professor of Clinical Neurology and Health Measurement at Plymouth University Peninsula Schools of Medicine and Dentistry is the representative on the national ‘Raising the bar’ steering group and lead for this workstream. Objectives: To agree on the […] 

Continue Reading »

Workstream D: Social determinants of health – How can we as HCPs address social determinants of health?

Dr Helen Ford, Consultant Neurologist at LeedsTeaching Hospitals, and Prof Gavin Giovannoni, Professor of Neurology at Barts and The London led the initial discussions for this workstream. They invite other MS Academy members to join as lead representatives to help take the projects forward. Objectives: To review how the social determinants of health affect […] 

Continue Reading »

Workstream E: Wellness and lifestyle – How to incorporate wellness and lifestyle interventions into clinical practice?

Dr Agne Straukiene, consultant neurologist at Torbay and South Devon NHS Foundation Trust, is a representative on the national ‘Raising the bar’ steering group and the lead for this workstream. Objectives: To review the evidence that wellness and lifestyle interventions improve MS outcomes. To define measurable outcomes in this area. To set achievable goals for the year ahead to increase awareness […] 

Continue Reading »