Patients as partners – raising the bar for MS during COVID-19
As with all of the work taking place to improve MS services at present, the coronavirus pandemic has amplified the needs addressed by the Patients as Partners workstream. Shift.ms have stated concisely that: ‘Those dealing with diagnosis and disease management are now doing so with reduced social support and face-to-face time with clinical teams. Health […]
Raising the bar by encouraging healthy lifestyles
From webinars on ‘what to do in the event you get COVID-19’ and videos on prehabilitation and rehabilitation for the lungs, to webinars and resources on PPE for the mind and managing stress during the pandemic, various professionals from different backgrounds have been sharing their expertise during this time. The health lifestyle workstream has galvanised […]
How the MS community has been ‘raising the bar’ during the COVID-19 pandemic
During the past twelve weeks, the world has changed significantly, and we have all had to adapt to challenging circumstances, new ways of working, and uncertainty in what comes next. We have not, however, ceased in working to raise the bar for MS, and nor have you. This has been a time of unprecedented dynamism […]
Shifting to self-monitoring – healthy lifestyles in MS
There has never been a better time to encourage patients to self-monitor than right now. With COVID-19 forcing the majority of MS clinics to take place via telephone or video link, and many people living with MS having reduced access to the professionals who usually support them, people’s general health is likely to go largely […]
Raising the Bar for MS – your essential update: December 2019
‘To improve MS services for all people with MS and their families, and to make delivering these services for all involved a rich and rewarding experience.’ MS Service Provision in the UK 2020 We want to keep the momentum going. Therefore, we need to ensure that those issues raised and discussed are addressed, to create […]
Data and audit – workstream update
These two workstreams have been merged due to the significant overlap between them. Led by Professor Jeremy Hobart and Dr David Rog, they underpin much of our ability to make lasting change in the most effective way possible. So far: 100% of the professionals at the audit workstream session in July agreed to participate in […]
Social determinants of health – workstream update
The social determinants of health (SDoH) are life-enhancing resources (fig 1): Their distribution across populations effectively determines length and quality of life. It is critical that we address these elements if we are to ‘raise the bar’ for everyone with MS, irrespective of their background, circumstances, education or income. Our starting point is to gather […]
Wellbeing and lifestyle – workstream update
The need to look at a wider picture of a person’s health, wellness and lifestyle, including nutrition, movement, sleep and stress, is becoming more widely accepted. Stress has been found to trigger relapse in MS (Mohr: 2004), and evidence around moving more and eating non-processed, natural food linked to improved mental and physical health across […]
Patients as partners – workstream update
Shift.ms lead this workstream with their community of people living with MS, or MSers as they term themselves, sharing and supporting the development of a model that gives people with MS the tools, information and confidence they need to live their best life with MS, from treatments to activities, across work life and home life. […]
The Leadership MasterClass
The applicants for the first Leadership MasterClass, taking place in February 2020, have been selected. The nine successful delegates will attend their first retreat on 19th February for a three-day retreat, covering ‘leading in a VUCA world’, ‘leading self’, and ‘leading others’. When asked how this course on change leadership is different to any other […]