‘The Forgotten Many’ reports on significant service gaps for people with secondary progressive MS

15 June, 2020 | Posted in: ,

A new report has been released today which shines a light on the significant gaps that currently exist across the NHS in Secondary Progressive Multiple Sclerosis (SPMS) policy, service provision and patient care.  Developed by Wilmington Healthcare and funded by Novartis, the report, ‘The Forgotten Many: A 2020 Vision for Secondary Progressive Multiple Sclerosis’, has […]

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Update on the UK MS Register and COVID-19 study

4 June, 2020 | Posted in: ,

4,500 people with MS are currently participating in the COVID-19 study through the UK register. View more update videos:  ukmsregister.org/Coronavirus Watch out webinar: Update of COVID-19 and MS – Morbidity and mortality figures This study is producing some very informative results, but the MS community and the study team are concerned that not all patients […]

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Multicentre audit on the use of MRI in the management of patients with MS – call for volunteers

15 May, 2020 | Posted in:

Linford Fernandes, Christopher Allen and Thomas Williams The UK MS Trials and Registries Consortium is piloting the first national audit on the use of MRI in patients with MS and are looking for volunteers interested in auditing their centre’s practice. The aim is to reach as many MS centres as possible to establish current UK practice, […]

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Latest data shows upward trajectory for avoidable MS emergency admissions continues

3 February, 2020 | Posted in: ,

The latest Hospital Episode Statistics (HES) data shows that emergency hospital admissions for people with multiple sclerosis (MS) continue to rise despite many of them being avoidable through preventative care.  MS Academy have partnered with healthcare intelligence provider Wilmington Healthcare to analyse the latest HES data and compare it to the previous two years, and […]

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Data and audit – workstream update

9 December, 2019 | Posted in: ,

These two workstreams have been merged due to the significant overlap between them. Led by Professor Jeremy Hobart and Dr David Rog, they underpin much of our ability to make lasting change in the most effective way possible. So far: 100% of the professionals at the audit workstream session in July agreed to participate in […]

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The audit so far and a call to arms

27 September, 2019 | Posted in: ,

Audit, the act of examining, measuring and comparing, is the ultimate in information finding. It is essential to understand the current situation and to know whether improvement is being made over time.  When we first set out to tackle service variance in MS, we heard about the necessity of audit and quality improvement tools in […]

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Workstream C: Audit – Get involved

21 August, 2019 | Posted in: ,

‘A pragmatic rolling UK MS audit: What data to collect and how to collect it painlessly’ Jeremy Hobart, Professor of Clinical Neurology and Health Measurement at Plymouth University Peninsula Schools of Medicine and Dentistry is the representative on the national ‘Raising the bar’ steering group and lead for this workstream. Objectives:  To agree on the […]

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Participate in our audit of MS services

5 August, 2019 | Posted in: ,

Delegates at our meeting MS Service Provision in the UK 2019: Raising the Bar agreed in principle to participate in the pilot audit; the aim of the audit is to help improve the lives of people with MS AND the work lives of their health care professionals (us) at a time when the challenges and pressures […]

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